« Previous
Next »
European Journal of Oncology Nursing
Volume 15, Issue 2
, Pages 124-129
, April 2011
Feedback of trial results to participants: A survey of clinicians’ and patients’ attitudes and experiences
References
- . Informing participants of allocation to placebo at trial closure: postal survey. BMJ. 2002;325:1329
- . Receiving a summary of the results of a trial: qualitative study of participants’ views. BMJ. 2006;332(7535):206–210
- . Offering to return results to research participants: attitudes and needs of principal investigators in the Children’s Oncology Group. Journal of Pediatric Hematology/Oncology. 2003;25(9):704–708
- . The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer. Pediatric Blood Cancer. 2007;48:441–446
- . Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer. Clinical Oncology. 2009;27:878–883
- . How do patients want to learn of results of clinical trials? A survey of 1431 breast cancer patients. British Journal of Cancer. 2008;98(1):34–38
- . Subjects’ expectations in neuroimaging research. Journal of Magnetic Resonance and Imaging. 2006;23(2):205–209
- . Attitudes of research ethics board chairs towards disclosure of research results to participants: results of a national survey. Journal of Medical Ethics. 2007;33(9):549–553
- . Participants’ uptake of clinical trial results: a randomised experiment. British Journal of Cancer. 2010;103(7):1081–1084
- . Communication of pharmacogenetic research results to HIV-infected treated patients: standpoints of professionals and patients. European Journal of Human Genetics. 2005;13:1055–1062
- . Interval estimation for the difference between independent proportions: comparison of eleven methods. Statistics in Medicine. 1998;17:873–890
- . Do patients participating in clinical trials want to know study results?. Journal of Natural Cancer Institute. 2003;95:491–492
- . Oncology physician and nurse practices and attitudes regarding offering clinical trial results to study participants. Journal of Natural Cancer Institute. 2004;96:629–632
- . Offering participants results of a clinical trial: sharing results of a negative study. Lancet. 2005;365(9463):963–964
- . The impact of sharing results of a randomised breast cancer clinical trial with study participants. Breast Cancer Research Treatment. 2009;115:123–129
- . Issues of consent and feedback in a genetic epidemiological study of women with breast cancer. Journal of Medical Ethics. 2003;29(2):93–96
- . Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting. Blood. 2005;106(4):1199–1202
- . Impact on survivors of retinoblastoma when informed of study results on risk of second cancers. Medical and Pediatric Oncology. 2003;41(1):36–43
- . Communicating the results of clinical research to participants: attitudes, practices and future directions. PLoS Med. 2008;5(5):0714–0720
- . Patients’ attitudes and preferences about participation and recruitment strategies in clinical trials. Mayo Clinic Proceedings. 2009;84(3):243–247
☆ Funded by Cancer Research UK grant no. C1289/A8202.
PII: S1462-3889(10)00101-8
doi: 10.1016/j.ejon.2010.06.009
© 2010 Elsevier Ltd. All rights reserved.
« Previous
Next »
European Journal of Oncology Nursing
Volume 15, Issue 2
, Pages 124-129
, April 2011
