“It's because it's cancer, not because you're a Traveller”-exploring lay understanding of cancer in English Romany Gypsy and Irish Traveller communities

  • Author Footnotes
    1 Permanent Address: Flat 7173–177 Hornsey Road, N7 6RA London England.
    Jenni Berlin
    Correspondence
    Corresponding author.
    Footnotes
    1 Permanent Address: Flat 7173–177 Hornsey Road, N7 6RA London England.
    Affiliations
    Researcher at the Faculty of Social Sciences, University of Tampere, Arvo Ylpön katu 34, PL 100, 33014 Tampere, Finland
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  • David Smith
    Affiliations
    Principal Lecturer in Sociology, Department of Psychology, Social Work and Counselling University of Greenwich. Southwood Site, Avery Hill Road, Eltham, London SE9 2UG, England
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  • Paul Newton
    Affiliations
    Research Lead in the Department of Adult Nursing and Paramedic Science, University of Greenwich. Southwood Site, Avery Hill Road, Eltham, London SE9 2UG, England
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  • Author Footnotes
    1 Permanent Address: Flat 7173–177 Hornsey Road, N7 6RA London England.
Published:March 09, 2018DOI:https://doi.org/10.1016/j.ejon.2018.02.010

      Highlights

      • The lack of trust of outside society negatively influences Gypsies and Travellers' health.
      • Visiting traditional ‘curing men’ is a part of Irish Travellers' health behaviour.
      • Information about cancer is first sought from family members, even if this information has proven to be inaccurate in the past.
      • Gypsies' and Travellers' gender rules and restrictions cause conflicts with health professionals.
      • Gypsies and Travellers find cancer services to be the least discriminative, compared to other health services.

      Abstract

      Purpose

      The lay understanding of cancer among English Romany Gypsies and Irish Travellers, has not been studied in depth before. Lay understandings of cancer, and illness in general, varies between different ethnic groups suggesting that procedures that work for one community may not work for another. Therefore, the measures that are in place in the UK to educate and treat people with cancer may not work for the - often hard to reach - Gypsy and Traveller communities. This study explores Gypsies and Travellers lay perceptions of cancer.

      Method

      In collaboration with community interviewers, 18 Gypsies and Travellers were recruited to take part in this study. Data comes from four semi-structured focus groups that were transcribed and thematically analysed using data-driven coding.

      Results

      A lack of trust of the wider society has contributed to some Gypsies and Travellers’ health related practices as has the persistence of old customs that negatively influence their health. As a reticence towards seeking outside help often exists, information about cancer is sought from family members. When engaged with cancer services however, Gypsies and Travellers generally feel them to be non-discriminative.

      Conclusions

      Health professionals need to develop a better understanding of Gypsy and Travellers’ health beliefs and practices in order to successfully interact with them. Information about cancer has to be delivered in an understandable form and to places where it reaches these communities. Because of historical societal discrimination, including by some health services, engaging with Gypsies and Travellers may require considerably more time and effort.

      Keywords

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